Dear SBSF Member, Are you a parent, child, or teen? We would like to invite you to help us support the development of a new SBS patient-reported conclusion survey for patients diagnosed with short bowel syndrome (SBS) in the pediatric ages. We encourage the parents to fill out the survey as a proxy to [...]
EVMS Magazine 2016-2017 Issue 9.4 Doug Gardener Dramatic improvement seen in patient survival in ICU; Chance discovery could transform care of sepsis and save millions of lives worldwide NORFOLK, VA (March 23, 2017) – A critical-care physician at Eastern Virginia Medical School (EVMS) believes he has found something that has eluded medicine for centuries: a [...]
61% of Americans turn to the internet for medical advice. while there is an abundance of healthcare information on the internet, many patients look for something more, such as an emotional connection. These connections are found through online support groups. In fact 1 in 5 online users have gone to the internet for support for [...]
By Jacob Durn Throughout life’s miseries, accidents, awkward moments, mistakes and nearly all social situations, I have the burning desire to scream this into the faces of all those around me: Why do I have to live like this? Read More
By Kalie Menge Almost every day now, I convince myself recovery is a pipe dream. I see where I’ve been, I see where I am and I see how many millions of miles away recovery is. I know it’s not getting any closer. I’m not getting any better. I’m getting worse, and I’ve been getting [...]
By Kate Rusmiselle I’m doing more than OK, because I have friends who accept me as who I am and I continue to meet people who will. A lot of people have done so with no questions asked. When friends do ask why I am the way I am, it is out of genuine curiosity [...]
By Kayla Shuch A woman who noticed I was in a wheelchair looked at my cast and asked, “What did you do to yourself?”I wanted to slap her in the face and gave a glare as to say WTF? I didn’t do anything to myself. My parents understood my reaction and explained my situation. This experience has become one of the [...]
Authored by: Samantha Craft In my day-to-day living, I seek out the familiar. Because the familiar doesn’t need to be analyzed. And in that there is ultimate refuge for me. Familiarity can come in multiple shapes and sizes — in a predictable routine, a familiar voice or face, a soothing melody, a favorite movie or [...]
By Brooks Fitts The next time you see someone with a disability, I want you to try something revolutionary. Instead of staring at them and wondering why they walk or talk a certain way, go up to them and truly make an effort to get to know them. You might just be surprised at what [...]
By Samantha Milne One of the problems I faced was that many learning support assistants are used to working with students who have learning difficulties, not a physical disability. My first piece of advice to any parent is to ensure the school knows about your child’s health and disabilities and how they affect them. Make [...]
By Jennifer Steidl At first all the people in your life are supportive, but as time goes on and you don’t get better, and you have seen this specialist, and that specialist and tried every suggestion of every caring friend from acupuncture, to massage, to “this amazing doctor that helped my friend who had the [...]
By Stephanie Rasmon As he finished his episode of frustration and we slowly made our way to the ramp, we met you and your daughter walking down the ramp. As a bit of encouragement for my son, I pointed in your direction and said “See! That’s where we go to go play.” Without any hesitation, [...]
