Mission, Vision & Values
The framework that guides advocacy, education, and support for the intestinal failure community
The Short Bowel Syndrome Foundation is built on dedicated advocacy, clinical collaboration, and profound empathy. Our work is guided by a clear vision, a defined daily mission, and core values that keep us a trusted sanctuary for the global intestinal failure community.
Our Vision
To deliver comprehensive, world-class education and support materials — serving as an inspirational guide for everyone who visits our site or engages with our global networks.
We work so patients, caregivers, and clinicians can confidently navigate advanced medical support and peer resources with greater ease.
Our Mission
SBSF is dedicated to the education, support, and empowerment of individuals living with Short Bowel Syndrome — and the healthcare providers who care for them.
We connect patients and families to essential resources that become a lifeline of hope, enabling fuller, more vibrant, and independent lives.
Seven principles that guide our internal operations and external partnerships:
Individuals living with SBS and their families are our foremost priority. Every initiative, resource, and partnership is designed with the patient’s physical and emotional well-being at the center.
Excellence and professionalism are non-negotiable. We strive to provide medically accurate, carefully reviewed educational materials that safely guide our community.
We operate as one cohesive team. Staff, international volunteers, and our medical advisory board work in harmony to dismantle the isolation of a rare disease diagnosis.
Building active collaborations — with support networks, pharmaceutical innovators, research universities, and major medical centers — is integral to sustained success in the global fight against SBS.
Integrity, honesty, and ethical conduct guide all our initiatives. We maintain transparency in advocacy, respect patient privacy, and keep our foundational voice independent and trusted.
Mutual respect forms the bedrock of our working relationships. We honor every patient’s unique journey, value specialized clinicians, and treat every community member with dignity.
Diversity of ideas, cultures, ethnicities, and socio-economic backgrounds fortifies our collective efforts. Inclusion drives innovation, and our global reach ensures every voice in the rare disease space is heard and valued.