🤝 Navigating Your Transplant Journey: Support & Networks
Whether you are preparing for an intestinal resection, awaiting a donor match, or adjusting to life post-transplant, you do not have to walk this path alone.
The Short Bowel Syndrome Foundation connects patients, families, and caregivers to a vibrant community. Through our dedicated resource network, our members gain confidence, build enduring lifelong friendships, participate in specialized social events, and actively support life-saving organ and tissue donation awareness.
👥 Specialized Support Groups
No matter where you are in your medical journey, there is a dedicated group of peers ready to share their insights, experiences, and strength.
| Support Category | Group Name | Access Link |
| Intestinal & Multivisceral | Intestinal & Multivisceral Transplant Support Group | Join Group |
| Transplant Unwrapped Support: Short Bowel, Intestinal Rehab & Transplant | Join Group | |
| Caregivers & Families | Transplant Caregivers Support Group | Join Group |
| Transplant Journey Support Group | Join Group | |
| Liver-Specific Support | ||
| Liver Transplant Patients | Join Group | |
| Community & Mentorship | The Transplant Community Outreach | Join Group |
| Surviving & Thriving | Transplant Survivors | Join Group |
🏛️ Trusted National & Clinical Organizations
When navigating complex clinical milestones, policy changes, or waiting lists, look to these established global and national transplant organizations for verified administrative and medical guidance.
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🌐 Intestinal Transplant Association (ITA / IIRTA)
The premier global professional section dedicated to advancing clinical research and patient care guidelines for intestinal rehabilitation and transplantation.
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A deeply student- and patient-friendly project designed to guide families through the everyday logistics of the organ transplant registry.
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📊 United Network for Organ Sharing (UNOS)
The private, non-profit organization that manages the United States’ national organ transplant waiting list, matching donors to recipients 24/7.
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📈Scientific Registry for Transplant Recipients
Provides advanced, data-driven statistical reviews and analytical tracking regarding national organ allocation systems and transplantation outcomes.
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🤝 The Coalition on Donation (Donate Life America)
A national alliance of local affiliates and national organizations dedicated to inspiring the public to register as organ, eye, and tissue donors. -
🌍 Transplant Recipients International Organization (TRIO)
An international peer-led advocacy network improving the quality of life for transplant candidates, recipients, donors, and their families.