Please Note: SBSF No longer carries the Patients Guide to Managing a Short Bowel by Carole Reese Parish, RD. To obtain a copy of this book please redirect to: Get My Copy!
61% of Americans turn to the internet for medical advice. while there is an abundance of healthcare information on the internet, many patients look for something more, such as an emotional connection. These connections are found through online support groups. In fact 1 in 5 online users have gone to the internet for support for their health concerns. Now many patients use those online connections and experiences as a supplement for medical advice.
The Short Bowel Syndrome Foundation, Inc. started out as just an online presence and support group by participating in pediatrics, and facilitation of an adult sbs support group. Though patients often long for more than two groups alone. SBSF has created a list of additional support groups to consider joining.
Short Bowel Syndrome Groups
- Short Bowel Syndrome Adult Support Group Entry
- Short Bowel Syndrome Foundation Families
- Short Bowel Syndrome Adults, Kids & Beyond
- Short Bowel Syndrome Foundation Group
- Avery’s Angels (TM) Gastroschisis Foundation Survivor Group
- Oley Facebook friends
Sepsis Support Groups
- Simply Sepsis
- Sepsis Angels Giving Sepsis Survivors HOPE
- Sepsis Awareness
- Life After Sepsis
- Sepsis survivors Canada
Chronic Illness
- “The Unchargeables” Chronic Illness Support
- Chronic & Invisible Illness Support
- Adult Chronic Illness Support Network
- National Invisible Chronic Illness Awareness
- Homeschooling with Chronic Illness
- Survivors of Chronic Pain and Illness
- Crohns, Colitis & Chronic Illness, Support
Gastrointestinal Organizations/Associations & Foundations
American Gastroenterological Association (AGA)
http://www.gastro.org
American Association for the Study of Liver Diseases (AASLD)
http://www.aasld.org
American Society for Gastrointestinal Endoscopy (ASGE)
http://www.asge.org
American Dietetic Association (ADA)
http://www.eatright.org
North American Society for Pediatric Gastroenterology, Hepatology, and Nutrition (NASPGHAN)
http://www.naspghan.org
Short Bowel Syndrome Management of Care
Survival and Parenteral Nutrition Dependence in SBS Patients
http://oley.org/?page=SurvivalPN_SBS
Short Bowel. Short Answer?
http://oley.org/?page=ShortBowelShortAnswr
Restoring GI Autonomy to Intestinal Failure Patients
http://oley.org/?page=RestoringGIAutonomy
The Role of Growth Factors and Glutamine in Enhancing Gut Adaptation
http://oley.org/?page=Growthfactors
Intestinal Care Centers: Who, What, When, Where
http://oley.org/?page=Intestinal_Rehab
Caregiver Resources
http://oley.org/general/recommended_links.asp?cc=39913
Transplant Related Resources
Scientific Registry for Transplant Recipients
http://www.ustransplant.org/
The Coalition on Donation
http://www.shareyourlife.org/
Transplant Living
http://www.transplantliving.org/
Transplant Recipients International Organization
http://www.trioweb.org/
TransWeb
http://www.transweb.org/index.shtml
United Network for Organ Sharing (UNOS)
http://www.unos.org
Intestinal Transplant Association (ITA)
http://www.tts.org
Intestinal Related Resources
American Cancer Society
http://www.cancer.org/
American Liver Foundation
http://www.liverfoundation.org/
American Society for Parenteral and Enteral Nutrition (ASPEN)
http://www.nutritioncare.org/
Center for Disease Control and Prevention (CDC)
http://www.cdc.gov/
National Digestive Disease Information Clearinghouse (NDDIC)
http://digestive.niddk.nih.gov/ddiseases/pubs/livertransplant_ez/
National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK)
http://diabetes.niddk.nih.gov/
Short Bowel Support
http://www.shortbowelsupport.com
The Oley Foundation
http://www.oley.org
Educational Brochures
Chronic Illness and Depression