Please Note: SBSF No longer carries the Patients Guide to Managing a Short Bowel by Carole Reese Parish, RD. To obtain a copy of this book please redirect to: Get My Copy!

61% of Americans turn to the internet for medical advice. while there is an abundance of healthcare information on the internet, many patients look for something more, such as an emotional connection. These connections are found through online support groups. In fact 1 in 5 online users have gone to the internet for support for their health concerns. Now many patients use those online connections and experiences as a supplement for medical advice.

The Short Bowel Syndrome Foundation, Inc. started out as just an online presence and support group by participating in pediatrics, and facilitation of an adult sbs support group. Though patients often long for more than two groups alone. SBSF has created a list of additional support groups to consider joining.

Short Bowel Syndrome Groups

Sepsis Support Groups

Chronic Illness

Gastrointestinal Organizations/Associations & Foundations

American Gastroenterological Association (AGA)

American Association for the Study of Liver Diseases (AASLD)

American Society for Gastrointestinal Endoscopy (ASGE)

American Dietetic Association (ADA)

North American Society for Pediatric Gastroenterology, Hepatology, and Nutrition (NASPGHAN)

Short Bowel Syndrome Management of Care

Survival and Parenteral Nutrition Dependence in SBS Patients

Short Bowel. Short Answer?

Restoring GI Autonomy to Intestinal Failure Patients

The Role of Growth Factors and Glutamine in Enhancing Gut Adaptation

Intestinal Care Centers: Who, What, When, Where

Caregiver Resources

Transplant Related Resources

Scientific Registry for Transplant Recipients

The Coalition on Donation

Transplant Living

Transplant Recipients International Organization


United Network for Organ Sharing (UNOS)

Intestinal Transplant Association (ITA)

Intestinal Related Resources

American Cancer Society

American Liver Foundation

American Society for Parenteral and Enteral Nutrition (ASPEN)

Center for Disease Control and Prevention (CDC)

National Digestive Disease Information Clearinghouse (NDDIC)

National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK)

Short Bowel Support

The Oley Foundation

Educational Brochures

Chronic Illness and Depression

Nutrition Basics

Central Line Specifications

Small Bowel Bacterial Overgrowth


Parenteral Nutrition

Enteral Nutrition