Support Group Access Request

SBSF support groups are private spaces for patients, caregivers, and families. New members must answer entry questions and agree to group rules. Requests that skip those steps may be declined with guidance on how to reapply.

Name
First Last
Email
Address*
City State / Province / Region Country
Facebook Profile
Facebook profile name (as shown on Facebook)
Have you already submitted a join request on Facebook?*
Brief reason for joining
I am requesting access as a…*
Which group are you requesting?*
- SBSF Adult Support Group
- SBSF Families Support Group
- SBSF GATTEX(R) Patient Support Group
- SBSF Mental Health Group
- SBSF International Group
Check the groups you would like to join.
Have you already submitted a join request on Facebook?
Are you new to SBS / intestinal failure?*
I understand SBSF support groups are private and moderated.*
I understand
I agree to answer the group’s entry questions and follow all group rules.*
I agree
I understand that incomplete requests, skipped entry questions, or refusal to follow rules may be declined, with feedback on how to reapply.*
I understand
I understand this form does not automatically approve Facebook group access.*
I understand

Community Support

Short Bowel Syndrome Support Groups

Connect with others facing similar challenges through our peer support networks.

Online support communities provide practical insight and a sense of belonging that complement professional medical care. The Short Bowel Syndrome Foundation maintains tailored peer spaces and partners with trusted groups so no one has to navigate this rare diagnosis alone.

Official SBSF Groups

Private peer spaces moderated by the Short Bowel Syndrome Foundation

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Official Facebook Page

Stay up to date with foundation news, educational webinars, events, and awareness campaigns.

Visit Page

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Adult Support Group

A private space for adults living with SBS to share experiences about daily challenges, work-life balance, and long-term nutrition therapies.

Join Group

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Families & Caregivers Support Group

For parents and caregivers of children with Short Bowel Syndrome. Share practical tips and emotional support.

Join Group

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GATTEX® Patient Support Group

For patients and families using or considering GATTEX (teduglutide) therapy.

Join Group

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International Support Group

A global community for patients and caregivers to share regional care experiences and treatment access.

Join Group

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Mental Health Support Group

A safe space focused on the emotional side of living with SBS — anxiety, isolation, body image, and coping strategies.

Join Group

Partner Networks

Trusted partner groups in the broader GI and transplant community

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Short Gut Families’ Support Group

Practical advice and emotional support for parents raising children with short gut / SBS.

Join Group

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Transplant Unwrapped Support

Support for complex intestinal failure, rehabilitation, and transplant journeys.

Visit Page

ℹ️ A Note on Community Participation

Peer support groups offer emotional solidarity and practical lifestyle tips but do not constitute medical advice. Always consult your gastroenterologist, colorectal surgeon, or specialized GI dietitian before changing diet, medications, or nutritional therapies. These communities are for connection and shared experience — clinical decisions belong with your medical team.