The Short Bowel Syndrome Foundation, Inc. (SBSF) stands as a beacon of hope and empowerment for the Short Bowel Syndrome (SBS) community across the globe. For over a decade, SBSF has been instrumental in weaving a network of support, connecting patients and their families with the vital resources they need to lead fuller, more informed lives.
Empowerment Through Education and Support SBSF’s commitment to education is unwavering. By providing a wealth of information on SBS, the foundation equips patients and caregivers with the knowledge necessary to navigate the complexities of the condition. The foundation’s online Adult & Family Support Groups serve as a cornerstone of this educational endeavor, offering a platform for shared experiences and learning.
Diverse Support for a Diverse Community Recognizing the unique challenges faced by different members of the SBS community, SBSF oversees a variety of support groups. These groups cater to adults, international members, siblings, fathers, and single parents, ensuring that everyone, regardless of their situation, has access to a supportive environment tailored to their needs.
Collaboration with Industry Experts In its quest to advance the quality of life for those affected by SBS, SBSF collaborates with leading advisory boards and serves as a consultant to pharmaceutical companies and researchers dedicated to short bowel therapy. This synergy with industry experts is pivotal in fostering advancements in care and treatment options.
A Voice for the SBS Community SBSF lends its voice and expertise through various speaking engagements, including interactions with pharmaceutical companies, participation in industry symposiums and conferences, and organizing patient meetings. The foundation’s presence in public speaking events underscores its role as an advocate and educator for the SBS community.
The Short Bowel Syndrome Foundation (SBSF) was established in December 2010 by Andrew “Andy” Jablonski in Lincoln, Nebraska1. It was founded with the vision to serve as a comprehensive resource for patients, family members, and healthcare professionals dealing with Short Bowel Syndrome (SBS). The foundation’s primary mission is to empower individuals affected by SBS through education, support, and resources, fostering a global community of informed and connected individuals.
Over the years, SBSF has expanded its reach and now boasts a growing membership of over 10,000 individuals worldwide2. This expansion reflects the foundation’s dedication to providing solace, support, and understanding to those directly impacted by SBS. The foundation’s efforts have been recognized, as it has been honored with reviews that highlight its significant impact on the lives of those it serves3.
SBSF’s history is marked by its commitment to education and support, offering various online support groups that cater to different demographics within the SBS community, including adults, international participants, siblings, fathers, and single parents2. These groups ensure that all individuals, regardless of their background, have access to support that resonates with their unique experiences.
In addition to support services, SBSF plays an active role in the medical community by collaborating with expert advisory boards and consulting for pharmaceutical companies and researchers involved in short bowel therapy research2. This collaboration aims to enhance patient and caregiver experiences and contribute to the advancement of treatment options for SBS.
As SBSF continues to evolve, it remains steadfast in its mission to empower and support the SBS community, making a positive impact both nationally and internationally. The foundation’s history is a testament to its enduring commitment to improving the lives of those living with Short Bowel Syndrome.
As SBSF continues to grow, now reaching over 20,000 members, it remains a sanctuary of support and understanding for those touched by Short Bowel Syndrome. The foundation’s vision extends beyond borders, aiming to touch lives and inspire hope on both a national and international scale. With each passing day, SBSF’s influence grows, mirroring the strength and resilience of the SBS community it proudly represents.