About the Short Bowel Syndrome Foundation
A global beacon of hope, connection, and empowerment for people navigating Short Bowel Syndrome
Founded in December 2010 by lifelong SBS patient Andrew “Andy” Jablonski in Lincoln, Nebraska, SBSF was built on a deeply personal vision: to ensure that no one ever has to face intestinal failure in isolation.
What began as a local grassroots initiative has evolved into an international advocacy and support organization — bridging the gap between clinical data and the human experience.
Mission
Empower individuals affected by SBS through comprehensive education, dedicated support channels, and life-sustaining resources — so patients don’t just survive, but live fuller, more vibrant lives.
Vision
Rare disease advocacy that drives policy change, accelerates clinical advancement, and inspires resilience on an international scale — far beyond regional borders.
Short Bowel Syndrome is highly complex and individualized. We translate dense medical literature into clear, actionable resources so families can confidently manage daily care.
Every anatomical journey is unique, and the emotional toll of SBS shapes families differently. SBSF facilitates peer-led networks tailored to real life.
Industry Collaboration
We serve as a consulting liaison to pharmaceutical innovators, biotech researchers, and clinical advisory boards — injecting lived patient reality into trial design and access to novel therapies.
A Powerful Voice
Pharmaceutical consultations, scientific symposiums, and organized patient meetings — challenging misconceptions and elevating the intestinal failure community on global platforms.
Andy Jablonski – Founder & Executive Director
Patient-led leadership behind SBSF
Candy Wolfe-Johnson – Executive Online Administrator
Community and online operations
Mission, Vision & Values
The principles that guide our work
Donate
Support our mission
Connect With Our Movement
Whether you are newly diagnosed, a caregiver seeking support, or a clinician wanting to understand patients better — our doors are open.
Welcome to your sanctuary of support. Together, we are altering the landscape of Short Bowel Syndrome.