G.U.T. Program
Gaining Understanding of Transitions
Educational support for patients, families, and caregivers navigating Short Bowel Syndrome milestones
| Program Pillars → | Download Materials → | Educational Hub → |
The G.U.T. (Gaining Understanding of Transitions) Program, developed by Takeda Pharmaceuticals, supports patients, families, and caregivers through complex SBS milestones — from hospital discharge to school, adolescence, and adult care.
SBSF shares this overview so families can find transition education in one place. Listing does not equal product endorsement.
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Discovery — Basics of SBS Anatomy of the small intestine, malabsorption, and what to expect after diagnosis or resection. |
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Going Home — Life at Home Hospital-to-home toolkit: equipment, home TPN or feeds, sterile technique, and daily routines. |
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Off to School 504 Plans and IEPs, medical breaks, and managing nutrition at school for parents and educators. |
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Adolescence Self-advocacy, social dynamics, and the emotional impact of chronic illness in the teen years. |
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Healthcare Transitions Moving from pediatric GI to adult care without gaps in treatment or insurance coverage. |
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MDT Coordination Making the most of visits with gastroenterology, surgery, nursing, dietetics, and pharmacy. |
Download G.U.T. Program materials
Full G.U.T. Program manuals and transition toolkits are provided through Takeda’s patient education and support system. Patients enrolled in Takeda Patient Support / OnePath can sign in to the secure portal to access resources.
If you are not enrolled yet, ask your GI or intestinal rehabilitation team about access, or start at Takeda Patient Support.
Takeda Patient Support →
OnePath sign-in →
Public GATTEX education tools (separate from G.U.T. manuals): gattex.com/resources-and-support →
Optimizing transition from pediatric to adult care in SBS and intestinal failure (JPEN).
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Swapna Kakani, MPH
Healthcare advocate; lived experience of SBS and intestinal failure |
Sivan Kinberg, MD, MS, MA
Pediatric intestinal rehabilitation and transplantation |
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Tegan Medico, MS, MPH, RDN, CNSC
Complex enteral and parenteral nutrition support |
Marie L. Neumann, MA
Healthcare transitions research and patient education |
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Educational Hub |
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SBSF Cares Program |
Always consult your intestinal rehabilitation team or gastroenterologist before changing home care, medication, or fluid routines based on educational program guides. Portal access is controlled by Takeda Patient Support / OnePath and may require enrollment through a clinician.