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61% of Americans turn to the internet for medical advice. while there is an abundance of healthcare information on the internet, many patients look for something more, such as an emotional connection. These connections are found through online support groups. In fact 1 in 5 online users have gone to the internet for support for their health concerns. Now many patients use those online connections and experiences as a supplement for medical advice.
The Short Bowel Syndrome Foundation, Inc. started out as just an online presence and support group by participating in pediatrics, and facilitation of an adult sbs support group. Though patients often long for more than two groups alone. SBSF has created a list of additional support groups to consider joining.
Intestinal Related Resources
American Society for Parenteral and Enteral Nutrition (ASPEN)
http://www.nutritioncare.org/
Short Bowel Support
http://www.shortbowelsupport.com
The Oley Foundation
http://www.oley.org
National Organization of Rare Disorders
https://rarediseases.org/patient-organizations/
Gastrointestinal Organizations/Associations & Foundations
American Gastroenterological Association (AGA)
http://www.gastro.org
American Association for the Study of Liver Diseases (AASLD)
http://www.aasld.org
American Society for Gastrointestinal Endoscopy (ASGE)
http://www.asge.org
American Dietetic Association (ADA)
http://www.eatright.org
North American Society for Pediatric Gastroenterology, Hepatology, and Nutrition (NASPGHAN)
http://www.naspghan.org