Pamela Mason
Patient Advocate · Speaker · Digital Creator · Volunteer Staff
Joined SBSF in 2025
Pamela Mason is a patient advocate, speaker, and volunteer with the Short Bowel Syndrome Foundation. Living with short bowel syndrome and other complex gastrointestinal conditions has shaped her passion for helping others feel heard, supported, and empowered.
She joined SBSF in 2025 and serves as unpaid volunteer staff—contributing as a digital creator and supporting webinar and community education efforts so more people can find connection and practical support.
Pamela is not paid by SBSF. She gives her free time to strengthen education, connection, and community for people living with Short Bowel Syndrome and intestinal failure.
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Patient advocate & speaker Brings lived experience into advocacy and speaking, helping patients and caregivers feel less alone and more empowered in their care journeys. |
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Medical Trauma DECIDE Toolkit Creator of the Medical Trauma DECIDE Toolkit—developed to support people navigating the emotional and practical impact of complex medical experiences. |
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Digital creator Supports SBSF’s digital presence, helping the foundation share education and community resources online in clear, accessible ways. |
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Webinar support Contributes to webinar and online learning efforts so patients, caregivers, and community members can access education from wherever they are. |
Building connection and community
Pamela is passionate about building connection and community for those living with SBS. Her advocacy is rooted in lived experience—and in the belief that people deserve to feel heard, supported, and empowered as they navigate short bowel syndrome and related gastrointestinal conditions.
Outside of advocacy
When she is not volunteering with SBSF, Pamela enjoys true crime, collecting comic books, playing video games, and spending time with her dog, Dominic.
With appreciation
SBSF thanks Pamela Mason for her dedicated volunteer service. Her advocacy, digital work, toolkit leadership, and commitment to community help strengthen a patient-led foundation built on lived experience and mutual support.
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