PATIENT GUIDE

Beyond the Gut

Living with SBS & IF · A Guide for Adults with Short Bowel Syndrome & Intestinal Failure

Living with intestinal failure is far more than a medical diagnosis. It touches every corner of life — reshaping your nutrition and hydration, energy, work, relationships, identity, and autonomy. It often means constantly negotiating a healthcare system unprepared for your day-to-day realities.

You do not have to navigate this landscape alone.

Created by the Short Bowel Syndrome Foundation, Inc., this guide brings together practical knowledge, lived experiences, and strategic tools so that your life can be defined by your possibilities — not the limitations of your gut.

Early Access & Copyright
Our goal is to publish this work as a complete, official patient guide. Until then, these materials are available for early access to support our members. All content is written and owned by the Short Bowel Syndrome Foundation, Inc. and Andrew Jablonski. Unauthorized reproduction without prior written consent is strictly prohibited.

READ
Available Chapters

— The Short Bowel Syndrome Foundation, Inc.

Copyright
All content is written and owned by the Short Bowel Syndrome Foundation, Inc. and Andrew Jablonski. Unauthorized reproduction without prior written consent is strictly prohibited.