SBS Communities

Finding Support in Online Communities By NPS Pharma, SBSF, Oley Foundation, & NORD Less than 1% of the population lives with a rare disorder. Finding support can be scarce and difficult. Though with social media, online communities have formed of patients, all supporting each other. The Short Bowel Syndrome Foundation, Oley Foundation, and National Organization of Rare Disorders speak on this topic. This educational video can be viewed through the link [...]

By The Oley Foundation Newport Beach Marriott Hotel & Spa Newport Beach, California July 5-July 9, 2016 Rooms at the Newport Beach Marriott are available at $169/night for single/double, $209 for a triple, or $229 for a quad, through June 17, and will be honored three days pre and post conference, based on availability. The Marriott's destination/resort fee is waived for Oley guests. Reserve early if you are planning to [...]

By: Kayleigh Lewis The more time young adults spend on social media, the more likely they are to become depressed, a study has found. The 1,787 US participants used social media for an average 61 minutes every day, visiting accounts 30 times per week. Of them a quarter were found to have high indicators of depression. Read this article

LINCOLN, NE., April 7, 2016 – The Short Bowel Syndrome Foundation, Inc. is proud to announce that later this month, the foundation will be coming out with a brand new website. The website was created by FireSpring, Inc. A Non-Profit Business that supports other non-profits. The Foundation has made some major changes in design, content, search ability, updated donation and contact form, along with a new Blog and Video feature [...]

By DailyMail Sugar found to be as damaging as early life stress, scientists discover. Chronic sugar intake triggers changes to hippo-campus the area of the brain, which is important for both memory and stress.Experts say changes noted in the brain are of 'great concern' given the high consumption of sugary drinks, particularly among young people. Read this article

By MedicineNet Depression is one of the most common complications of chronic illness. It is estimated that up to one-third of individuals with a serious medical condition experience symptoms of depression. Read this article

By Yahoo Health News After blood and sperm banks, Dutch researchers have now opened the country's first "poop bank" in a rare and cutting-edge branch of medicine to treat people with chronic gut infections. Read This Article

Boston Children's Hospital is known for its innovation in Short Bowel Syndrome. It was where the STEP procedure was created by a team of surgeons to lengthen the small intestine. They give a solid overview of the condition. Visit their site for SBS when clicking on Read More. Read More

By Jon Fortenbury (The Atlantic) When should you disclose medical conditions to a date? Friends? When is illness too much for a relationship or friendship to survive? Read this article

By MedcineNet.com The pain and fatigue that people with chronic illness experience have a large impact on their daily lives, including sleep. Because of their illness, these patients often have trouble sleeping at night and are sleepy during the day. This is especially the case for people who have neurological (nervous system) diseases such as Parkinson's and Alzheimer's. Insomnia can make the person's pain and quality of life worse. In addition, some [...]

By Canadian Mental Health Association Mental health and physical health are fundamentally linked. People living with a serious mental illness are at higher risk of experiencing a wide range of chronic physical conditions. Conversely, people living with chronic physical health conditions experience depression and anxiety at twice the rate of the general population. Co-existing mental and physical conditions can diminish quality of life and lead to longer illness duration and [...]

Article Taken from Healthcare Global Healthcare in the United States is expensive, but which medical procedures carry the costliest price tags? In a recent issue of Healthcare Global magazine, they profiled the top 10 most expensive medical procedures, below are the top six.     Liver transplant  USD $577,100 Bone marrow transplant USD $676,800 Lung transplant USD $797,200 double, USD $561,200 single Heart transplant  USD $997,000 Heart-lung transplant  USD $1,148,400 Intestine transplant USD [...]